Monday, November 13, 2006

I REFUSE to be scared.

I had an endocrinologist appointment today. It was really short at just under an hour. My a1c was 7.4. I was somewhat pleased with that number. I expected it be higher, based on my control lately. But I had set a goal for myself of having an a1c right around 7.0. Six months ago, I was there. It has risen every since. First 7.2, now 7.4. The other slightly bad news is that I had protein in my urine. I know it can happen sometimes and not mean anything. I am more worried about what it COULD mean. I am trying my best NOT to be scared. I am 19 and I do not want to be dealing with complications. Dialysis is something that scares almost as much as loosing my eye sight. I refuse to live the next few weeks until I do a repeat test in fear. I can not do that to myself. Odds are, because of where I am in my cycle, (sorry guys) it is nothing. Here's hoping that's true.

11 comments:

Allison said...

Man, that's tough. I've had protein in my urine before, but the next test came back totally normal. Has happened since then. You'll be fine though. 7.4 is still a good A1C. Just make sure it doesn't go up anymore. :-)

Christine said...

I see my endo this week too, and had protein in my urine at my last visit. I'm hoping it will be gone this time.

Great job on the a1c!

Anonymous said...

I know how you feel. The last endo appt. I had, protien was found in my urine too. Even though it may be nothing, it is SCARY to think what could be... My aunt (also a t1) was on dialysis for several years before she got a kidney transplant two years ago. Luckily she is doing just fine, but the thought of it happening to me scares me to death.

7.4 is a good number. Like Allison said, just make sure it doesn't go up any more.

Anonymous said...

i had protein last time, i need to take another test for it, but i'm scared to find out the result?

Scott K. Johnson said...

Scary.

I'm sure it will be fine, and was related to other things.

Felix Kasza said...

Worst case? Early complications can be ameliorated and even, in some cases, completely reversed, by exercising brutally tight blood glucose control. More work, but better than dialysis.

That aside: There are any number of reasons for microalbuminuria (what was your ratio?), including menses, exercise, and whatnot. It will probably turn out to have been a false alarm.

Cheers,
Felix.

Anonymous said...

Thank you for posting this. I had protein in my urine over the summer, and unfortunately just found out this week that I still have some. It's comforting to see that others have had this and been okay.
Fingers crossed for all of us with protein.

Jen said...

Thanks to everyone for the words of encouragement. It really means a lot to hear of people who have had protein and it turned out to be nothing.
Felix, I do have my period. What difference does that make? I guess I'm missing how the two are connected.

Allison said...

Well the whole reason you have protein is because your kidneys weren't up to snuff. I had it because I was sick. I think when your body is stressed or busy doing other things then it doesn't properly clear out your system. So you period might have something to do with it, but I don't know. Just get it checked again when they tell you to and make sure you are healthy and not running any marathons or the like.

Minnesota Nice said...

I feel that I lost some of my best years (youth-wise) being paralyzed by fear of complications, and don't you do it!
About five years ago, I had massive amounts of protein in my urine - my a/c ratio was 275, where anything less than 30 is normal. Two years later, after starting on Avapro and working on my control, it was down to 22, and 6 months ago it was 9.
As everyone so far has said, there are a ton of variables. And, I guess I'll be blunt, but if you were menstruating and even a miniscule drop of blood got in the cup, that could account for the protein.
Always keep in mind that complications are most successfully dealt with when caught early.
Hope the next results are good.

Ron1975 said...

WOW! I can't believe this happens to so many people. I've been ignorant on this topic until I had to recently get a medical examination for my job and they said I had protein in my urine. I didn't understand much but the guy said my reading was like 160 or something. Now, I'm scared as hell! He said it could be a problem with my kidneys. I'm scared because over the past two years I have had constant pain in my lower back and sides and under the armpit and the chest. Pretty much my whole upper body. I know I should have seen a doctor but with no medical insurance you just try to ignore it. Has anyone had these pains before?